BTSG stands for Brain Tumor Support Group
We are for the Brain Tumor Affected
Amongst various tumors affecting our body, Brain Tumor brings about significant disruption in the life of the patients and their care givers. While the focus is on treatment, there are various psycho-social issues to be addressed. We at BTSG Awareness Foundation, are there for taking care of these needs of those affected by this illness. With about 120 types of Brain Tumors, it is important to help our patients bring things into perspective. We are there to help you with this. There is always a worry of missing out on some new treatment. We will help you connect with the experts. There is so much to say and express. We are there to help you express your feelings and address your apprehensions. Clinical Trials are going on in various parts of the world. We could help you provide information regarding them. There are logistics needs to be met during the course of the treatment and recovery. We shall try to help you with these.
Our Monthly Support Group meeting is for patients and care givers. It is available for all to join free of cost. Please email at btsgfoundation@gmail.com or call at 7880083005 for the link to join the meeting. Please share your latest medical record / nature of illness / biopsy report.
The BTSG Awareness Foundation is a Section 8, not-for-profit entity incorporated under Ministry of Corporate Affairs. It accepts contributions individually and through CSR activities (CIN: U85300MP2019NPL049532) (PAN number: AAICB6347G)
We are pleased to announce the Bengaluru Support Group for Brain Tumour Patients.
Please contact Mr Brijesh Deshpande for joining this group. Mobile: 9886624904, Email: btsgbengaluru@gmail.com
Bengaluru Brainn Tumour Support Group
Please join
Contact @9886624904
btsgbengaluru@gmail.com
May is Brain Tumour Awareness Month
2024
INTERNATIONAL BRAIN TUMOUR AWARENESS WEEK
2023
28th October to 4th November 2021
Please contact 7880083005 for more participating in activities.
VARIOUS ACTIVITIES CONDUCTED DURING INTERNATIONAL BRAIN TUMOUR AWARENESS WEEK
International Brain Tumour Awareness Week
24th — 31st OCTOBER, 2020
To spread awareness and recognise challenges faced by Brain Tumour patients and their care givers.
Various activities were conducted during this week.
“GUIDELINES FOR BRAIN TUMOUR PATIENTS DURING COVID-19
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You can access the IBTA Covid-19 information page direct by clicking https://theibta.org/covid-19/
BRAIN TUMOUR CHARTER OF RIGHTS
Seventy-five organizations from around the world have endorsed the new Brain Tumour Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed with brain and central nervous system tumours.
BTSG Awareness Foundation is proud to have been associated with various Brain Tumour advocacy organisations all around the world in this effort.
The Charter enumerates ten fundamental categories of “rights” for brain tumour patients that every country should strive to deliver:
Acknowledgment and Respect
Appropriate Investigation of Signs and Symptoms
A Clear, Comprehensive, Integrated Diagnosis
Appropriate Support
Excellent Treatment and High-Quality Follow-Up Care
The Care Relationship
Supportive/Palliative Care
Rehabilitation and Wellbeing
Medical Information and Privacy
Appropriate End-of-Life Options and Care
Within each category, specific policies, practices, and standards – a number of which will be aspirational in some countries – are defined.The Charter provides a framework for the reduction of inequalities in care and the achievement of policy objectives aimed at improving healthcare systems and communications. It can also be used by individual patients to underpin particular aspects of their care. Ultimately, the goal of The Brain Tumour Patients’ Charter of Rights is to achieve the best possible health and quality of life for adults, children and adolescents living with brain tumors by encouraging and supporting quality standards, policies, and practices.
BTSG Awareness Foundation is the only participant from India in the International Brain Tumour Alliance (IBTA) summit at National Institutes of Health, Bethesda, USA. A brief overview…
OBJECTIVES of BTSG Awareness Foundation
(a) Awareness of brain cancer in the community
(b) Support at diagnosis- including special tests
(c) Support for treatment
(d) Caregiver support and respite care
(e) Rehabilitation and survivorship
Activities:
(a) Regular meetings of the group on various themes
(b) To empower the patients with knowledge sharing regarding Brain Tumors. This includes making information about Various Clinical Trials in India and Abroad on Brain Tumors, opinion regarding centres of excellence in India and abroad.
(c) Financial support for diagnosis, molecular testing
(d) The small things are the big things :
Finding a doctor
Reaching a hospital
Navigating the system
To have a system in place for second opinion by experts
Post operative shared care
Help in therapy – chemotherapy, radiation, surgery
(e) Advice on returning to school, college, job; or on marriage or parenthood
(f) Growth hormone support to teenagers and young adults with pituitary and other brain tumors
(g) Organizing road shows, flash mobs, participating in marathons; fundraising during picnics
(h) Engaging with celebrities and corporate in the spirit of social entrepreneurship.
(i) Advocacy with educators, employers, insurance companies, government and social groups so that brain cancer becomes known as manageable disease, and cured patients get non-discriminatory treatment
(j) Collaboration of healthcare professionals city -wide, state -wide for record keeping and registry of brain cancer
(k) To collaborate with other national groups with the purpose of setting up of good quality research into brain cancer.
(l) Raising funds for all the objectives listed above and new ones which may come up with the progress of the profession
