January 2024 Monthly Support Group Meeting

December 2023 Monthly Support Group Meeting

October 2023 Monthly Support Group Meeting

August 2022 Monthly Support Group Meeting

May 2022 Monthly Support Group Meeting

The May Support Group Meeting has Professor Manjul Tripathi , Consultant Neurosurgeon at PGI Chandigarh as our special guest. He had good interaction with our patients and answered queries regarding Gamma Knife treatment for various brain tumours.

April 2022 Monthly Support Group Meeting

February 2022 Monthly Support Group Meeting

DECEMBER VIRTUAL MONTHLY SUPPORT GROUP MEETING

First Patient support group Physical Meeting (post covid) 30th october, 2021

All participated very enthusiastically in this first Physical meet post COVID. There were stories told, songs sung and dance performances with birthday celebrations.

75th Independence Day Virtual Meeting

In this meeting, Dietician Ms Payal outlined the various dietary modifications for Brain tumour patients during the course of their treatment and recovery. This was well attended with many patients discussing their own traditional India diets rich in anti-oxidants.

Yoga session for Brain Tumour patients and their caregivers — 27th June, 2021

Support Group meeting for Care Givers

20th June, 2021

This was a first such support group meeting for Caregivers of Brain Tumour Patients. Often, during the entire journey, the needs of caregivers are sidelined. This meeting for specifically for caregivers to talk to them and address their issues.

Online support group meeting May 2021

This was the first meeting after the second wave of COVID affected our country. It was good the see all the participants safe. Lot of queries were addressed related to vaccination. Those who had not taken vaccination were also motivated to go ahead for the same.

Online support Group meeting in March 2021

Online Support Group meeting for February 2021

This meeting had dr Gaurav Gupta, Consultant Radiation Oncologist as our guest speaker. He addressed various queries related to Radiation therapy for Brain Tumours.

First Support Group meeting of 2021 — January 2021

December Virtual Meeting was conducted alongwith TYA Cancer Foundation

October Virtual Meeting was held on last day of International Brain Tumour Awareness Week

Mr Anirudha Saxena and his musical troupe were part of this Virtual Support Group meeting. They played melodious numbers, few of them on demand by our group members. This meeting was very lively and enjoyed by all. Some of the members themselves sang few songs.

September Virtual Meeting was held with Brain Tumour Foundation of Pakistan

Independence Day Virtual Support Group Meeting — 15th August, 2020

Virtual Support Group Meeting — 2nd August, 2020

After a gap of 2 months due to COVID related disruptions, a support group meeting was held 2nd August. There were many new patients in this meeting. Heartening to see was patients discussing and motivating each other and guiding them on how to overcome challenges.

Virtual Support Group Meeting — 10th May, 2020

40 patients participated in the Virtual Support Group meeting held online. Ms Savita Goswami from Tata Memorial Hospital was an invited expert in this meeting. There was a lively and healthy discussion with Ms Savita outlining ways to overcome various challenges during the course of treatment of Brain Tumours. The patients and their care givers participated actively.

Virtual Online Patient support group meeting conducted on 12th April, 2020.

The April monthly meeting was conducted online successfully. It was first time that a proper patient support group meeting was conducted in view of lockdown due to COVID pandemic. It was attended by 22 patients and care givers. Dr Ranjit Kumar, Clinical Psychologist and Dr Ashwini Malhotra, Pulmonologist were invited faculty. Dr Malhotra answered and cleared various misconceptions about COVID. Dr Ranjit Kumar guided patients and care givers on how to maintain mental strength and courage right from diagnosis, during treatment and follow up.

On 8th April, a Virtual Online meeting was conducted for a small group of patients.

Support group meeting

The monthly support group meeting was held on 9th February 2020. It was attended by 40 patients and their caregivers. Some important points —

1. Invited Talk on “Diet for Brain Tumor Patients” was given by senior dietician, Ms Vinita Mewada. She highlighted the role of a balanced diet, the importance of seasonal fruits and vegetables, and also mentioned the important food items which are to be avoided and those to be preferred. There were significant queries by relatives. A good two-way interaction was seen in this talk.

2. One of the patients, a long term survivor of Intra-cranial Germ Cell Tumor also celebrated his brithday. Cake cutting was done alongwith other pediatric brain tumor survivors very enthusiastically.

A Support group monthly meeting was held on 29th December, 2019. About 30 patients and their care givers participated in this meet. Those who overcame the treatment for brain tumors successfully shared their own experience and motivated the ones undergoing treatment and guided them on how to overcome this situation. Few important points highlighted —

1. Social integration — Return to routine social activities. The patients want that at some stage, they should be allowed by their care givers and doctors to take their own responsibility and go to their profession and activities.

2. Adaptive rehabilitation — it may not be possible for some patients to return to their previous physical and professional activities. In such scenario, a discussion can be done with counselors, treating doctors and occupational therapists and possiblities can be put forth to allow for return to profession and earning.

3. Narrative medicine — “Tell your story” — participants were motivated to share their own struggles and issues. This could help other patients but would also help relieve their own emotional burden significantly.

4. Sound healing session was conducted by renowned Sound Healing Expert Mrs Aarti Sinha.

5. Motivational speaker — Ms Poonam Shroti, a President’s medal awardee gave a motivational talk. She herself is affected by “Osteogenesis Imperfecta” and battled a brain hemorrhage being comatose for 2 months.